Posts by clara@getaword.in

In today’s episode, we’ll hear from two women who both required surgery to treat their breast cancer but made different decisions about what happened after that surgery. Christy Burbidge had a mastectomy on her left side and decided not to have her breast reconstructed. Suzanne Fonseca opted for reconstruction after her breast surgery but experienced one complication after another, and multiple surgeries later, decided to have her implants removed for good. There’s no right (or wrong) decision when it comes to selecting the treatment that is right for you. And no choice is without risks or wondering after the fact if you made the right decision.

Susan G. Komen’s Worship in Pink is a volunteer-driven breast health educational program powered by local faith-based communities. The program empowers faith communities with knowledge and resources to take an active role in their breast health. Here today to discuss the Worship in Pink program and why it is so important for Black congregations are Desiree Elder, Associate Pastor at First Corinthian Baptist Church in Harlem, and Se’Nita Harris, an FCBC church member and Komen’s Multicultural Marketing Manager.

When active treatment ends and the last appointment is over, you are feeling many emotions. Normal is nowhere on the list. This is a point upon which most everyone can agree – there has been a great deal written about the harsh reality patients face when treatment ends, and even that word – patient. You really are no longer a patient, and that in and of itself requires a mindset shift. For all these weeks and months of treatment, a patient is all you have been. And now you’re back to your Before Life. But nothing feels like Before. Today’s guest felt ill prepared for the abrupt end of treatment and the challenge of jumping back into the rhythm of what her life looked like before breast cancer. She thought about what she wanted her survivorship to look like and found a way to take something painful and turn into something purposeful. Rebecca Walden is here to share her story with us and how she now writes about her experience to help, inspire and heal others.

A metastatic breast cancer diagnosis is difficult. You’re processing a lot of information and dealing with many emotions. You may feel overwhelmed and scared, but you are not alone. Today’s guest was diagnosed with invasive lobular carcinoma 6 months after her mammogram came back clear. Before she could begin treatment, she learned her cancer had metastasized to her abdominal lining. It has been quite a road for Mary Randall over the past 2 years since her diagnosis and she is here today to share her tips for staying positive and adjusting to a new kind of normal in order to thrive.

Today we are excited to introduce ShareForCures, Komen’s groundbreaking research initiative that puts patients at the center of scientific breakthroughs. We’ll explore how ShareForCures is making waves by harnessing the power of data, empowering patients to share their health information to expedite the search for cures and better treatments for diseases like breast cancer that touch us all. Here today to tell us more about this extraordinary platform, why they are participants and the importance of diversity in research are ShareForCures Chief Scientist Dr. Melissa Bondy and two-time breast cancer survivor and Komen Scholar Dr. Barbara Segarra-Vasquez. 

Advances in diagnostic imaging have the potential to personalize care for the MBC community. This is because these more disease-specific or target-specific imaging agents can more precisely measure cancer activity and burden at multiple time points starting at the time the patient is diagnosed and is commonly used to determine whether a therapy has been effective. On today’s show we will be discussing diagnostic imaging and its role in breast care to help enable patients to understand their diagnosis and treatment options. Joining us to share their knowledge and experience with diagnostic imaging and self-advocacy are Dr. Hannah Linden, a medical oncologist, and Gwen Manchion, who is currently living with metastatic breast cancer.

When you are diagnosed with breast cancer, the unknown can sometimes feel like the scariest part. The support of family, friends and others can help as you go through the diagnosis, treatment, and recovery. Some people find going to a support group is helpful and some people desperately long for connection with other survivors who have been through similar feelings and situations. Today’s guest, Cara Sapida, was on our show back in early 2021 and shared a poem that she had written with our listeners called Oh the Places You’ll Go Fighting Cancer. It was a poem that expressed very real emotions about cancer, the shock and reality that diagnosis can bring, and it clearly resonated with you all, as it was one of the most downloaded episodes that we’ve ever had on this show. Since we spoke to Cara last, she has continued to share the realities of her breast cancer experience through writing and has published a book called Not the Breast Year of My Life. She’s here today to tell us about this journey and fill us in on how things have been going.

A breast cancer diagnosis can be life altering for women and men at any age. But for younger women who want to have children, a diagnosis can immediately change their life plans. Some treatments can prevent a woman from carrying a child; some can make it more difficult to become pregnant; and some can require quick decisions about freezing eggs before treatment begins. And for women who are diagnosed with breast cancer while pregnant, tough decisions must be made to ensure the health and safety of baby and mom, or to understand the possible impact treatment can have to the baby. None of these decisions or situations are easy, but fertility is an important consideration for women who are diagnosed with breast cancer at a younger age. Today, I’m honored to welcome Dr. Ann Partridge, a world-renowned oncologist who focuses on treating breast cancer in young women, and Lindsay McGloughlin, a breast cancer survivor who tried but did not become pregnant after finishing active treatment.

Whether you’ve had a mammogram or are preparing to have your first mammogram, chances are that you’ve heard a myth or two that might make you nervous about this important annual screening test. Here with us today to debunk some of the most common mammogram myths is Erica Kuhn, Komen’s Sr. Manager of Health Information & Publications.