How Komen’s PCC Supports Those Living with MBC and Caregivers

[00:00:00] Adam Walker: From Susan G Komen, this is Real Pink. A podcast exploring real stories, struggles, and triumphs related to breast cancer. We’re taking the conversation from the doctor’s office to your living room. Metastatic breast cancer, also called stage four, is when breast cancer is spread beyond the breast to other parts of…

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An Inside Look at a Breast Cancer Caregiver’s Perspective

Sergio Andres Mendoza lost the love of his life, Sarah Fernandez Mendoza, to metastatic breast cancer in 2017. Since then, he has worked tirelessly to honor Sarah’s legacy while raising their two young children, giving back to Komen in multiple ways and providing inspiration for other breast cancer caregivers who are going through what he experienced. Sergio is here today to talk about caregiver support and how he supports Komen’s mission to end breast cancer.

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Real Talk: Latinas with Breast Cancer 

This is Real Talk, a new podcast series where we’re going to break down the stigmas and feelings of embarrassment and talk openly and honestly about just how difficult breast cancer can be – from diagnosis, to treatment, to living with metastatic breast cancer, to life after treatment ends.   

September is Hispanic Heritage Month. Breast cancer is the most common form of cancer among Latinas and today I’m pleased to welcome two women who can help break down the cultural and personal stigmas about breast cancer in the Latina community.

Ashley Fernandez and Brenda Nelson are also living with metastatic breast cancer, the most advanced stage of breast cancer that cannot be cured. They’ve both felt that making friends in a new community has been hard, as they didn’t want to overshare about their lives but also wanted to be genuine and form new friendships.

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Unexpected Financial Burdens of Metastatic Breast Cancer

Continuously increasing treatment costs for patients with metastatic breast cancer can create financial hardship, which is known as financial toxicity. According to The Kaiser Family Foundation, more than 50% of women delay or avoid breast cancer care because of the associated costs. Financial toxicity can lead to difficulty accessing nutritious food and paying bills, as well as keeping up with the cost of basic living expenses. There can be many other hidden costs that add up quickly, including the cost of childcare during medical appointments and gasoline for trips to the doctor. All these stressors negatively impact cancer care by affecting a patient’s health, medication adherence, quality of life and mental health. Here today to talk to us about these unexpected costs associated with an MBC Diagnosis are Komen Scholar and Professor of Medicine and Epidemiology and Director of the Breast Cancer Program of the Herbert Irving Comprehensive Cancer Center, Dr. Dawn Hershman, and an incredible woman who has been living with MBC for 18 years, Deborah Croskrey.

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Expanding Breast Cancer Imaging Through Public Policy 

Widespread access to preventive screening mammography, without cost sharing, is available to millions of women as a result of the Affordable Care Act (ACA). Unfortunately, some individuals at a higher risk of breast cancer or those requiring follow-up imaging due to an abnormal mammogram result face hundreds to thousands of dollars in patient cost sharing. Susan G. Komen is committed to championing legislation that addresses this disparity in health insurance coverage to ensure all cancer patients have fair and equitable access to breast imaging that may save their lives. Here today to discuss Komen’s public policy efforts at the state level are California State Senator Anthony Portantino and Rebecca Birch, Komen’s Director of State Policy & Advocacy.

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How I Spoke Up For What I Needed

[00:00:00] Adam Walker: From Susan G. Komen, this is Real Pink, a podcast exploring real stories, struggles, and triumphs related to breast cancer. We’re taking the conversation from the doctor’s office to your living room When someone has breast cancer, it’s scary for them and for you, what can you do to really help? What…

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Finding a Provider Post-Diagnosis

A breast cancer diagnosis can be overwhelming. Knowing which questions to ask can help you understand your diagnosis and advocate for yourself as you begin to assemble your healthcare team and develop your treatment plan with your doctors. Finding the right providers is perhaps one of the most important decisions a patient will make post diagnosis, as it is critical to find a doctor you are comfortable with and who is well suited to treat your cancer. Sometimes, barriers exist related to finding a provider, for example if insurance won’t cover certain providers or health systems. Joining us today on Real Pink is Miranda Zinn, a breast care helpline specialist who is going to share how Komen helps patients overcome some of the issues they experience, both through our navigation efforts, as well as our policy efforts.

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Inspiring Women to Self-Advocate

Self-advocacy is an important and ongoing part of a breast cancer journey. It can begin as soon as you have an inkling that something is wrong and should continue through follow-up care and treatment. It can be as simple as asking your healthcare team more questions and letting them know how you’re feeling, or finding support by connecting with other people going through a similar experience as you. No one should face breast cancer alone. Knowing what to expect can help and getting support is important for your well-being. Here today to tell us her story and the importance of trusting her voice throughout her breast cancer experience is Melissa Oakes.

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Impact of Diagnosis on Mental Health

A breast cancer diagnosis can bring a wide range of emotions, including shock, fear, sadness and anger. These feelings are normal. Some people find joining a support group or talking to a counselor or therapist helpful in coping with these feelings. Today’s guest is a Komen staff member and a licensed clinical social worker with experience helping patients through the transitions that they face through their cancer diagnosis and treatment. Here today to talk to us about the impact of diagnosis on mental health and some helpful strategies to help cope is Amy Culver.

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Breast Health in the LGBTQ+ Community

[00:00:00] Adam Walker: Support for The Real Pink Podcast comes from Merck, from Susan G. Komen. This is Real Pink, a podcast exploring real stories, struggles, and triumphs related to breast cancer. We’re taking the conversation from the doctor’s office to your living room. Welcome to the Komen Health Equity Revolution podcast series. Each month…

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