Real Talk About Breast Cancer

Patient navigators empower and guide patients to overcome barriers during cancer treatment, helping to ensure a seamless, high-quality breast care journey. In this episode, we are going to learn more about Komen’s Patient Navigation Program, which connects patients to resources and support every step of the way. I am excited to be joined by Tamarah Davis and her patient navigator Roselyn White to learn more about how Komen’s Patient Navigation program is improving outcomes for Black patients.

As with any major illness, breast cancer can have effects beyond the person who is diagnosed and the death of a parent can be one of the most significant losses that someone will ever face. This is particularly true for young adults in their twenties, who are still learning to navigate life and fully transition into an independent adult. Loss, grief and mourning affects everyone in different ways and it can be a challenge to learn how to cope and seek support. Today’s guest was thriving in life and working the job of his dreams when he lost his mother to Inflammatory Breast Cancer. He then found himself shutting down from his family, his faith and even himself in the years that followed. He bravely fought his way back and is now honoring his Mom by running marathons and raising money for Susan G. Komen.

Women are often the gatekeepers of the family’s health and the ones responsible for ensuring their family members stay on top of health information and screenings. Because of this, it can be helpful for them to understand that certain inherited gene mutations may increase the risk of breast cancer in both women and men in their family. These inherited gene mutations may also increase the risk of other cancers such as ovarian cancer (in women) and prostate cancer (in men). Therefore, it is important for family members with inherited gene mutations to share their test results with both men and women in their families, since they all may benefit from talking to their doctors about how these mutations impact their risk for breast, prostate and other cancers as well as exploring options for genetic counseling and testing. Here today to help us specifically understand the relationship between breast cancer and prostate cancer is medical oncologist, Assistant Professor of Medicine and Director for the Program for Breast Cancer in Men at Dana-Farber Cancer Institute, Dr. Jose Pablo Leone. Dr. Leone, welcome to the show!

Every person’s experience with mastectomies is different. Some people might experience extreme body dysmorphia following their surgeries and others might find the healing process easier. Concerns about body image and sexuality are common and can be especially hard for young breast cancer survivors, who find that regaining body confidence after a mastectomy can be difficult. Today’s guest was diagnosed at age 36 with stage IIIC triple-negative breast cancer and because of ongoing treatments, has not yet been able to have a breast reconstruction or even have expanders put in. Here today to talk about how that has affected her physically, emotionally and mentally is LaToya Bolds-Johnson.

When something feels off, it’s important to pay attention to it. Sometimes that might mean having to stand up to your healthcare team when your needs are not being met, which is not always easy. Asking questions or pushing can be difficult when you’re feeling overwhelmed, scared, or want to be seen as a good patient.However, you know your body best and self advocating really boils down to listening to your body and speaking up for it. Today’s guest was having warning signs that something was wrong, but dismissed them at first because she could not feel a lump. She knew her body and despite doctors telling her that it was no big deal, she pushed for further testing, which ultimately led to her diagnosis. Here today to tell her story and why it is so important to advocate for yourself until you get the answers you need is Laurie Potz.